World Hemophilia Day: Spreading Awareness and Sensitivity towards Hemophilia
Introduction Every year, 17 April marks World Haemophilia Day , a day dedicated to raising awareness about a rare bleeding disorder that silently affects over 1.36 lakh Indians, yet remains shrouded in ignorance (Haemophilia Federation India, 2023). For those living with haemophilia, life hangs “on the tip of a needle”—a metaphor for their dependence on frequent clotting factor injections and the fragility of their existence. This blog delves into their unseen battles, the systemic gaps that amplify their trauma, and how collective empathy can transform their lives. "Haemophilia is a bleeding disorder where blood doesn’t clot properly, making bleeding hard to stop. Even a minor injury can lead to excessive bleeding if not treated. Patients often require infusions of clotting factor concentrates (through injections) to manage the condition. This reliance on needles for treatment, and the constant vigilance to avoid injury, inspire the metaphor “life on the tip of a needle....
